I turned 30 years old this week.
A real milestone for me.
It has caused me to reflect back on my life over the past few years …
I was thinking about how this blog has been exceptionally positive. When I started it in June last year, I actually thought it might be quite sad in tone, or dramatic. It has surprised me how very positive everything has been, how positive I have felt.
I had a very hard time when I was a teenager, and in my early 20s. Many people don’t realise just how difficult deafness can be. It is a hidden disability, an isolating disability, because it is one of communication.
I was in bed a few minutes ago, trying to sleep, but turning all my life events over in my head, thinking about the journey that has brought me here. It’s 4.45am now, and as always I think the best way to cure insomnia is to get up and write about what’s keeping me up! Once I get it out, I’ll sleep well again.
Sometimes I just can’t believe that I considered suicide.
When I was 21, all the difficulties associated with my deafness came to a head, and I decided to kill myself.
I had struggled with university. I didn’t know any other people who were deaf, and I didn’t identify with any deaf people. No one understood what I had been going through. I was too anxious and afraid to tell people how difficult it was.
At that point, closed captioning in Australia wasn’t that widespread, so I was cut off from even little things like watching TV, or hiring VHS’s or going to the cinema. I remember very clearly coming out of a cinema with all my girlfriends, and realising I hadn’t understood most of the movie, and so I couldn’t join in with their conversation afterwards. It was a devastating feeling sitting quietly trying to follow the conversation around me, and not knowing what they were talking about.
I couldn’t afford decent hearing aids. They are so expensive, and being a university student at the time meant I had very little money.
Another issue was uni, where group work and lectures and tutorials were so hard for me to deal with, because I was struggling to hear what was going on. Going into uni every day was stressful like you wouldn’t believe. I remember one tutorial where I was trying my hardest to lip-read everyone – the lecturer, and the students as they made comments. Usually I was silent in these classes, as I wasnt quite sure who was saying what. But one day I really thought I had a relevent and interesting comment to make about a topic we were discussing. So I put my hand up, said my bit, and there was silence. The lecturer looked at me in a funny way, and said: “I just said that.”
I was so embarrassed. I never made another comment or participated in that class again.
These are the awful parts of deafness. It’s a lonely thing to deal with. I wouldn’t wish it on anyone.
It got to the point where I was sure I was going to be dependent on my family for the rest of my life. I mean how could I get any well-paying job being as deaf as I was? How would I ever meet a partner? I didn’t feel like I could relax even in the presence of friends because I was always struggling to hear them, so life was just one big constant source of stress.
I was only happy when alone.
The worst thing was, I knew life hadn’t even really begun. I was 21! I remember thinking: “This is not even the beginning. Life is just going to get harder.”
The way I felt, life was already unbearable… And it was about to get a lot harder.
The night I considered suicide, I remember so clearly.
I’d had a particularly bad night at uni, had a fight with my mum, had almost missed the bus home, had a terrible, awkward conversation with a friend of mine – it was late at night, and as I walked through the darkened Sydney streets towards my house, I said to myself: “That is it. I can’t take it anymore.”
I made the decision then and there that I would kill myself, and that it needed to be that night.
The most enduring memory of that moment is how time suddenly stood still. All I can remember was the sense of calm that came over me. My breathing, my footsteps on the pavement, the bright clear moon high above me, the darkened, damp city streets, the street lights. Everything became acutely clear and still. There was a heavy, calm feeling in my chest, the first time that I had ever felt the jittery feeling leaving my heart and stomach.
That was what frightened me the most. How very calm I was. I was so detached, so rational. It was like a relief.
I realised that this was the biggest decision I had ever made in my life, and there was some strange comfort in having taken control back in my life – I started rationally thinking it through. What were the pros and cons of dying. How would I do it. Was there anything that I thought might improve to stop me from doing it.
I walked and walked the dark streets, and thought long and hard.
As I went through the pros and cons, the thing that caused me to pause was that I didn’t know what happened after death, and therefore, I couldn’t prove that what I was experiencing now would end when I died. If it didn’t end, would I be doomed to be stuck in this eternal moment?
I also knew my mum would be devastated.
Finally I came to a decision. It was a feeling I wanted to end, not my life per se. So I said to myself: “No. Death is not the answer. I will not do it. I will find another way to end this feeling. “
I walked all the way back to the apartment I shared with my mum, in that calm, still, transcendent state. I realised how close I had come. I walked upstairs, sat down at my desk, wrote my mum a letter telling her what I’d planned on doing, and how I had decided not too, but that I would need help. I then went to bed.
I slept, but it wasn’t like any sleep I have had before. I closed my eyes, and lay in one position all night, neatly under the covers, unmoving until the sun came up. It seemed the night was over in a few seconds. I opened my eyes to find my mum standing over me, looking down at me with stillness in her eyes, holding the letter.
She didn’t look upset or anything. And I remember her saying, I will help you. And I got up, we went and had a cup of tea in the kitchen, and talked. And I knew then that everything was going to be alright.
January 7, 2010 at 5:53 am
What a moving story, Kate, thanks a lot for sharing! I admire the clarity with which you realized that it was a feeling you wanted to end, not a life. And that you went to ask for help right away.
My best wishes for the life past 30!
January 7, 2010 at 6:15 am
Such a personal story to share, thank you x
I’m so glad things are more positive now. It’s very tough being Deaf, especially so when the support isn’t there. There’s a huge feeling of isolation which can be unbareable at times.
Enjoy your thirties. You deserve it x
January 7, 2010 at 9:31 am
Wow. Thanks for sharing such a personal story. I am glad you got through it. I know that deafness can make you feel so alone. I have been there. I totally identify with you when you wrote, “I was only happy when alone”. It’s funny, I often feel the most alone when I am sitting with a large group of people. It’s hard, but it is definitley so much better now as I approach thirty.
(e
January 7, 2010 at 10:21 am
Kate
First – Happy Birthday
I think you should look at that dark patch as ‘everything is up after here’.
Look what you have achieved! The blog is positive because you are positive.
You’ve reached 30.
You graduated from University despite the odds.
You are leading a life which I think is pretty full [from reading your blog] – you can travel, you can speak on the phone.
You are working professionally.
You are representative of what can be done despite the odds and you’re an advocate to protect and encourage others.
Thanx for sharing ‘the dark side’ with your audience. Some of us will know that in the darkest of times you succeeded and now we can too.
Thanx also for being as active as you are – we need advocacy. And you’re the exact kind of person to do it!
Thing is, what will you do for your 40th?!
JC
January 7, 2010 at 11:36 am
Thank you.
January 8, 2010 at 1:01 am
Thanks for sharing that very personal and profound story Kate. It was recounted in so much detail that I can imagine that the memories are still painful for you and I admire you courage in getting through this period.
The “black dog” of depression is very common amongst people who are hearing impaired (particularly where there is no involvement or association with the strong and inclusive Deaf community).
I certainly wouldn’t have picked this story coming from your pen. Whilst I have only known you for a short period of time, you came across as one of the most confident and accomplished hearing impaired professional I have met!
Happy birthday! You have a huge future ahead of you – both in your professional and personal endeavours.
January 8, 2010 at 3:14 am
Happy Birthday Kate…
I read that with a tear in my eye – and a huge sense of relief that you didn’t decide to end your life that day. I have always thought your blog is incredibly inspiring and positive and now, when I’m feeling down or downright annoyed at being deaf, I will remember your words… and also ask for help – probably from my mum!
January 8, 2010 at 6:07 am
What a heartfelt, honest post. I remember having a turning point in my life– it was the day that I decided to embrace being deaf and become the best darn deaf person I could possibly be. Since then, my life has been a pretty blessed one.
I’m glad you made the decision not to end your life– the world is richer as a result.
January 13, 2010 at 8:15 am
Karen,
In an ironic way, you were prepared for deafness, even to the point of knowing a head impact would make it worse, and being surrounded by family members who are deaf.
[To others: Read about the Valle gene that causes deafness in her family in her superb blog entry titled "The Deaf Gene | A Deaf Mom Shares Her World" at
http://deafmomworld.com/the-deaf-gene ].
Dan Schwartz,
Cherry Hill, NJ, US of A
January 25, 2010 at 3:48 pm
My wording was a bit awkward in my comment to Karen, as it was the middle of the night when I typed it in.~
January 8, 2010 at 12:28 pm
I am so glad everything has worked out for you. Did you get a cochlear implant? My daughter who is profoundly deaf got one at the age of 13 but she found she prefers not to use it. She is satisfied with using ASL and her cellphone to communicate.
Lindsey Petersen
http://5kidswdisabilities.wordpress.com
February 19, 2010 at 4:00 pm
that’s hilarious, you asked if I got the implant – well, the blog is called Kate’s Cochlear Implant. Yes I got the implant. This blog is all about it.
January 8, 2010 at 7:01 pm
Thinking of you…I’m so glad we connected….
You are helping so many people!
January 13, 2010 at 8:47 am
Kate, once again you hit the ball out of the park. I’m sharing this entry with two hearing impaired people I know who have also contemplated suicide.
That being said, as a former hearing healthcare professionsl (and soon going back in), there’s something you wrote back on June 26th
[How do you know when you are ready for an implant? at
http://katelocke.wordpress.com/2009/06/26/ready-for-an-implant ]
that is troubling to me, and should be disturbing to other professionals as well:
“The SCIC were the ones that initially said to me: `You are not deaf enough to benefit from the implant yet,’ and then again, said it every year, even when other private clinics were saying `go for it’…”
Truthfully, looking back over your blog entries, you were Not Well Served by SCIC by them forcing you to wait with their `You are not deaf enough… yet‘ attitude.
You also (tellingly) wrote immediately afterwards,
“(those private clinics probably stood to benefit financially from me getting an implant)”
Since I’m involved in the healthcare debate here in America, looking at other countries’ healthcare policies, let’s turn around what you said, namely “You’re not deaf enough” and the profit motive of the private CI centers, to this premise:
It is in SCIC’s financial interest (s a governmental entity) to ration CI’s to people who were more deaf than you were when you first went to them.
The fact that you even went to other CI centers searching for an answer to your deafness speaks volumes about rationing care at SCIC.
When you get a chance, dig out your old audiograms and compare them to the orange area in figure two of “Identifying Cochlear Implant Candidates in the Hearing Aid Dispensing Practice” at:
http://www.hearingreview.com/issues/articles/2009-05_02.asp
and compare them, determining when you would have been a candidate.
Kate, your blog has made a difference in many people’s lives all over the world — They tell me that!
January 13, 2010 at 9:05 am
UPDATE
From AudiologyOnline, 8/17/2009:
“Unidentified and Underserved: Cochlear Implant Candidates in the Hearing Aid Dispensing Practice”
http://www.audiologyonline.com/articles/article_detail.asp?article_id=2272
Two of the people cited in the article, John Niparko, MD and Jennifer Yeagle, AuD at Johns Hopkins are the ones who implanted and MAP my girlfriend’s CI; and I personally know Yeagle, and also Mead Killion, who is cited as well. All three are Heavy Hitters.
January 16, 2010 at 2:16 pm
Hi Kate,
I found you via a Facebook friend. Thank you so much for writing about this and summing up the things I’ve had trouble finding words for. It’s a relief to know I’m not alone, so thank you!
January 16, 2010 at 2:22 pm
Kate,
I found your blog through a Facebook friend. I have been profoundly deaf (on paper, anyway
) since I was 4 (I’m 26 now) but I function like a hard of hearing person. Thank you so much for sharing your story and putting into words what I could not. I so share the pain of not belonging and not knowing what’s going on. It means a great deal to be able to read this and know I’m not alone, so thank you, thank you, thank you!
God bless!
January 30, 2010 at 1:24 pm
Hi Kate,
I can empathise with you vicariously through my son. I know we ( you and I) and Let Us Hear are wearily battling the Federal Government for justice but we increasingly despair and the worry and isolation and depression just keeps getting worse. We don’t even have the support of immediate family. (It is the elephant in the room). We see no light at the end of the tunnel and just an extremely bleak future. We have gone to the very top and pleaded with kevin Rudd face to face, all to no avail.Justine Elliot just couldn’t care less. At the moment we keep trying, but…
January 30, 2010 at 1:29 pm
Any support provided by simply joining our facebook site would be greatly appreciated by all those who are over 21 and abandoned by Australian Hearing Services because of the discriminatory policies of the Australian Federal Government. The group is… Help Stop the Australian federal Government Discrimination Against Cochlear Implantees.
January 31, 2010 at 1:15 pm
Kate,
I love reading your blogs. They are so helpful to me as a mother of a Cochlear Implant child. It is difficult to know what our 2 year old is experiencing without hearing stories from adults as yourself, so thank you for sharing!
Thank you also for sharing this story. I did good not to cry while reading it, until I read that your mom was standing over you that morning and ready to help. This is who I want to be… that ever ready mama, watching for my moments to help and support. I am so glad you had her to lean on! I know that my daughter faces so many challenges in her life, but knowing from you and others that can voice it, that deafness is so isolating, helps me to know how to help include her better in all that we do. Thank you again. I’m gonna share your blog with a friend of mine who is in her forties and about to get her first CI in the next month or so. Her name is Katie, and I know she needs to hear what this experience is like from someone who has gone through the same struggles. You are inspiring! Keep it up, and Happy Birthday. I’m 30 as well, its fun. I like me all the more as I age.
February 3, 2010 at 8:08 am
“It was a feeling I wanted to end, not my life per se.”
That is the key. Having walked in your shoes, I was too tired to figured that out. I survived. Yet, wiser from the experience. What brought me to that point, never changed and it wont due to factors beyond my control. But, I can change how it affects me.
Thank You Kate!
June 16, 2010 at 8:39 am
Kate, you’ve been through a lot. As have I. I’m 25 years older than you and definitely agree that I want this feeling to end. I grew up in a backward midwest farmtown. Ridicule and exclusion were the norm. So much so that I prefer being alone to being with others. hvaing a partner is a non-starter. I’m neither Hearing nor Deaf, but an N of one. It’s like being sentenced to Solitary Confinement for life. I see hearing people as indifferent at best, often cruel. The culmination is that I choose not to see myself as a person, so as not to see myself like them.
Nancye makes a good point in saying that the situation will not change, but we can change how it affects us. That’s what I’m struggling with today, is to find a way to change how it affects me. I have a long way to go.
October 14, 2010 at 4:00 am
Hello Kate,
I’m 17 and I am living in the UK and training to become an BSL interpreter.
Deafness has always been a part of my life, my mother is deaf as is her brother. And my fathers brother is also deaf, so I have never seen deaf people as different. In many ways they are more rounded human beings. This blog has opened my eyes to so many things,my mother is a strong woman who has battled through mental health problems and this blog has made me realise and come to terms with why this may be. Being a teenager I feel as if my mother has protected me from her own conflicts, but now I can relate to her. I definitley think this will strengthen our relationship. Thank You
You are a shining beacon for the sentiment ‘ what doesn’t kill you only makes you stronger’.
June 16, 2011 at 8:21 pm
Please do have a look at our subtitled video – I Am Alive. It’s a short video encouraging us to talk openly about suicide http://t.co/EfDPoUa Please share with loved ones
March 12, 2012 at 5:24 am
Thanks for sharing such a personal and touching story. I’ve gone through the same thing several times. I am profoundly deaf in my right ear. I have been for almost two years. It is devastating. I considered suicide several times, too. I am finally going to get some financial help in purchasing hearing aids next month. I want to feel normal and part of life again.
May 1, 2012 at 7:43 am
IKatie, you are not the first one to feel this way. I lost my hearing too. The isolation is the worst part. You feel left out of everything, and have to work double hard to stay connected to the world. I am much older than you, but had very little family support. People just expect you to figure it out. I have a friend who is now about to get a CI and she is feeling isolated just as I did. My daughter sent her to me to give her support. It feels good to help someone else who is facing the same challenges I did 5 years ago. Keep going Katie, God has a plan for you.
Donna
October 18, 2012 at 2:52 pm
I am glad you are doing good now. I understand how you feel ! I am deaf with visually impairment, and is it ever boring and lonely ! I think there should be deaf school just for the deaf like they had in the old days. The kids who went there do better than the kids who did not have the chance. It would be nice to be in a theater for the deaf – to scream out and act out and also let go of the years of we-have-to-be nice-while-we-suffer-in-silent image. Glad you are doing better. I have a guide dog, She is lovely and my best friend and family.