So it’s been four and a half months now since I got the cochlear implant in my right ear.
I haven’t written an update in a while, because I haven’t felt like there is anything interesting to report!
But I guess what I think of as being boring, my family and friends might find interesting.
So, here we go.
Since I last wrote, I am hearing so much better than before – in fact, my last sentence and word perception test had these results:
- sentences – 100 per cent
- words – 87 per cent
- sentences in noise – 95 per cent
So… yes. It is amazing. I am still profoundly deaf when I take off my cochlear implant and hearing aid, but now I can actually hear stuff when I have them on.
I’ve been having conversations with Ben without facing him, so it looks like I can definitely hear some people without lip-reading.
I have also been still using the web captel trial put on by ACE. This means I’ve been able to practice using the telephone calling normally, and still listen and hear what people are saying.
And I am pleased to say that I can hear most of what people say on the phone now, without captions. Amazing. People have no idea that they are speaking to a deaf person on the phone.
When I call Ben or mum, I don’t use captions at all. Ben always whines now when I call – “Why do you have to call me all the time now!?” HAHA! He liked it better when I just texted. Now I am calling up to say things like: ” I am walking down the street! What do you think of that! I am passing a garbage bin. What are you doing? Look, a bird!”
And as for other news, I have been elected to the board of ACCAN, which is the Australian Communication Consumer Action Network – this will mean that I can really make it known what deaf people, or those with other disabilities will need in order to stay connected in Australia. For example, people don’t realise that for the Web CapTel trial to work, it is important that you have a stable internet connection that doesn’t drop out. If it drops out you may be logged out or your captions will stop coming through and you will have to reconnect. Imagine having to do that during an important phone call!
I’ve also been nominated and shortlisted for a 2009 Australian Human Rights Community Award for work with deafness and disability in Australia. WOWSER! Doubt I will win (you should see the actual shortlist! amazing people), but it’s still a hugely great honour to be shortlisted!
As for other stuff happening with the cochlear implant – I was over at my friend Georgia’s house the other week, having an ‘infrared sauna’. She runs a natural therapies studio. She gave me a pamphlet to read in the sauna so I could see all the good stuff it was doing. At the very back in tiny letters it said: “Do not use this sauna if you have an implant i.e. pace maker or silicon.”
And I was like “WHAAAAAAAAT!!!!!??” slapped my hand over my ear, and jumped out – thought maybe my head was going to explode! I mean, I didnt have the external bit on, but I thought maybe it might melt my brain, make it come out my ears, and turn me into a zombie.
It didn’t however (that might have been kind of cool), and I checked with Cochlear Ltd later – they said that according to their information from engineers etc, infrared shouldn’t affect cochlear implants (nor should any other sauna – good to know!).
Yay for cochlear implants. Such a new invention, it’s like being the first person to walk on the moon or something. You just don’t know what might happen when you do stuff that is considered normal! like brains exploding from saunas. Awesome.
November 17, 2009 at 6:25 am
hey i really liked your blog for school i had to look up 3 deaf blogs and i thought out of all the blogs iv read yours have by far been the best thank you for writing!
god bless
November 19, 2009 at 4:01 am
Johnny,
I’ve combed through many dozens, perhaps hundred, of blogs (as I prepare to get my CI this winter) looking for hidden nuggets as well as an overview of what to expect; and I can say that Kate’s blog is one of the five best I have found.
The other four — All ladies, no less! — are by:
Katie-louise Bailey;
Abbie Cranmer’s Chronicles of a Bionic Woman
Wendi Kast: “Suddenly Silence”
Gina Sprenkel
Take a look at these, but be sure to comb through this blog, as it is one of the best CI blogs in the world.
November 18, 2009 at 3:59 am
is that hearing with just your implant or is that with your hearing aid? In Boston they do some test with just my CI and some with my hearing aid. My doctor this last week ordered and inplant for my left ear. So in a few months I will have CI in both ears
November 28, 2009 at 10:39 am
Love your comment about the sauna experience. I’ve read a few instruction manuals for things which say “do not use if you have an implant” – and I have pretty much the same reactions that you had – but I haven’t been brave enough to check with Cochlear yet…
Oh, btw, still must meet re HFY sometime
December 1, 2009 at 2:15 pm
See this page
December 1, 2009 at 2:22 pm
Maybe I forgot the page
http://ilsordo.blogspot.com/2009/12/i-can-hardly-believe-it.html
December 29, 2009 at 2:16 am
Hi Kate, Loving the story! My mom is getting an implant today, also profoundly deaf, and I can’t wait to see her result! Thanks so much for sharing, it’s great to see someone talking about living with it after the fact!
December 30, 2009 at 6:59 am
Hi Kate!
Once again, you come through with a nugget of gold in your blog!
This time, it’s your concern about the sauna damaging the on-board electronics in your implant. In fact, it is not only legitimate, but also Cochlear’s reliability engineers may have missed something: The effect of heat on the tantalum capacitors all three CI manufacturers use (and Envoy Medical uses in their Esteem fully implanted hearing aid).
Turns out, these little buggers can be quite troublesome, especially as their limits are approached. According to Ted Adams, typically tantalum electrolytic capacitors rated at 30 to 35 volts are used at no more than about 3 volts (90% derating). There are other ratings as well, but I want to focus on: storage (as opposed to operating) temperature… And I don’t know if it’s been ever addressed in reference to a sauna with the proper thermal model. Once again, Kate, congratulations on the good question!
I’m not going to pretend to give you the answer if indeed a sauna will damage your implant, because without blueprints, a schematic and a component list of your implant it can’t be answered.
Instead, what I’m doing is to provide the resources Cochlear’s Engineering department will be able to use to analyze their implant:
1) The engineer will need to set up a thermal model similar to a window in summertime: You have the indoor (“cold face”) and the outdoor (“hot face”) sides; and from that determine the temperature the on-board components are exposed to from the heat flow across the implant;
2) The thermal data, combined with the parts, will be analyzed using the mathmatical tools, starting with MIL-HDBK-217, from the Reliability Information Analysis Center*, in Rome, New York.
So there you have it: Pass this on to the engineers at Cochlear, and they can then give everyone an accurate answer to whether a sauna can indeed damage the implanted electronics.
Hope this helps!
Dan
————
Footnote:
*Originally a part of Rome Air Defense Center and then spun off from the Air Force a few years ago, RIAC has provided support for military electronics contractors and customers for 40 years (including my days when I was in RCA Engineering 1979-80!). Recently, this DoD agency is now taking on commercial work, so manufacturers like AB, CC, & MedEl can benefit.~
January 1, 2010 at 9:11 pm
Kate, I am just amazed at your results – well done. I hope I can achieve those percentages too