I wanted to talk about why I started this blog, and why I think it’s important.
My sister-in-law Karen has been reading it, and said to me tonight:
“The weird thing about a blog (if you don’t post comments) is that it can make you feel really close to the person writing it, whereas they don’t even know you’ve been reading it!”
I agree that blogs are weird in that way – they can take you deep into a person’s view of the world, in a way that is different to having a conversation … but this is a good thing, and this has been my main aim with the blog.
I felt it was really, vitally important that the people close to me had a view of what it was like to get a cochlear implant and to be deaf, because I think while there are perceptions that an implant will immediately change a life for the better, it can be so isolating, so personal, so huge, and often people have no idea what an impact it can have on a life.
And so many people think of a cochlear implant as being a one off ‘cure’, when it is nothing of the sort. It’s hard to explain when I haven’t even experienced it, so that is why this blog is important – I hope that it will show the truth, all the good bits and the bad.
Because newspaper articles and stories can focus on the positives a bit too much. One of the first things I picked up about cochlear implants when I started to research them was that none of the real life experiences I came across quite matched the newspaper articles and media I had read about. Or rather, the media glossed over the difficulties you face in rehabilitation and surgery.
After struggling on my own through my deafness in early 20s, not telling anyone what I was experiencing, I learnt that the difficulties we face are much harder when not shared.
So, I’ve decided that though it might be hard at first, or maybe I might embarrass myself, or people will think I am sharing too much, or being silly/overreacting - honesty and openess are important. There’s not enough of it in the world today. Everyone wants to gloss things over, let everyone think their lives are perfect. But sharing a difficulty, a fear, a reality, is worth it – especially in this case, when other deaf people might be considering getting an implant, and need to see it like it is.
July 5, 2009 at 11:09 am
Kate, I think this blog is fantastic. So true what your SIL said that people can read a blog and feel close to the writer without the writer ever knowing they’ve been there but sometimes that’s important, too. Just as you have the fear of looking silly for things you write, others, as you say, might feel silly for having the questions in the first place – and here you are so bravely answering them by putting your life right out there.
Don’t think you need to be nervous about what you write, though. From a writing perspective, you have a great, entertaining and approachable style and from an information viewpoint it’s just… wow. Can’t believe how much you’ve done and achieved. I think it’s great that you’ve been so proactive to change things for other people so they have more information and support than you had. And you’re so matter-of-fact about it. Good for you. There should be more Kates in the world. – A
July 7, 2009 at 12:52 pm
Kate, I have been away for a few days celebrating July 4th festivities with Chris’s family. I have been sneaking away here and there to read your wonderful blog via my blackberry. It is so touching, moving, insightful and, well just amazing. I have enjoyed every word. You may not realize it, but it does definitely make me feel closer to you and everything you are going through, even though I am far, far away. I can’t wait to read all the updates over the coming days, months, years!
July 11, 2009 at 12:05 am
Very well put, Kate! I had similar reasons for starting my blog too….
September 9, 2009 at 2:06 pm
You’re on the right track Kate.Technology has been our friend we need to use it for good. Pat